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Own your story.

20 Apr

Owning our story can be hard but not nearly as difficult as spending our lives running from it. Embracing our vulnerabilities is risky but not nearly as dangerous as giving up on love and belonging and joy—the experiences that make us the most vulnerable. Only when we are brave enough to explore the darkness will we discover the infinite power of our light.-Brene Brown

When I came across this Brene Brown quote a few days ago, I couldn’t help but realize how much it applied to my certain circumstances. Not just the overall situation of living with Cerebral Palsy, but the more recent circumstances of realizing that I must now face the emotions which resulted from my recent return to physical therapy. Though it would be so much easier to resist thinking about the emotions and memories that returning to physical therapy brought up for me, I know that I must face them if I’m going to be able to move forward.

Throughout my life, I have heard people tell me how awesome it is that I don’t let my CP define me. According to my CP doctor, I “make it look easy.” Though I do understand that most people are trying to compliment me, it’s also hard for me to believe them in the full sense of the phrase. Though I don’t ever introduce myself as “the girl with CP,” I often wonder if that’s what others are thinking, specifically people I have just met. Overall, I try not to let myself focus too much on all of the difficulties it brings, because if I did that, how the heck would I still be able to find joy in the little things? However, at the same time, my CP affects me on a daily basis. Every day is hard, and every day I am reminded of how different I am from those around me. At the same time, I am reminded of how far I’ve come, and that’s where “owning my story” comes in.

Though I began writing my memoir in order to help myself come to terms with what I’ve faced and to help others in similar situations, I have also just wanted to shed a light on just how many of us are struggling in ways people may not truly understand. Putting all the benefits and support aside, “owning my story” through writing about it and essentially saying “Yes, this is who I am, and I am damn proud” has been the most frightening, scariest, most frustrating and overall hardest thing I’ve ever done. In all actuality, it sucks, but it’s helping me. Truthfully, it reminds me of the idea that you’ve got to hit rock bottom before you can truly understand your own strength. It’s cliché, but it’s also true. In many ways though, I feel as if trudging through this first draft of my memoir is similar to hitting rock bottom, over and over again.

Despite the frustrations of “owning my story,” it’s my way of being the voice of so many others who aren’t able to express what it’s like living with a disability. If writing my memoir means I can give a voice to a few of those people, then I will plunge into the darkness of it. Just because there are people who aren’t able to express the emotions connected with what they have experienced doesn’t mean that they shouldn’t have a chance to still be heard. If anything, all of those people deserve it a little bit more. After all, every one of us has so much to learn from each of the people we come into contact with, so why not start by owning the experiences we’ve faced, no matter how scary and painful?

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Advice from Rumi.

16 Dec

“Raise your words, not voice. It is rain that grows flowers, not thunder.”

The power of a calling.

13 Dec

“The more scared we are of a work or calling, the more sure we can be that we have to do it.”

To all my mentors, past and present.

9 Dec

After reading Arianna’s post on role models, I was inspired to write my own post regarding the numerous mentors I have had throughout my life thus far. Despite the fact that the mentors who are in my life right now are currently the most important to me, I know the mentors of my past also helped me during times in my life when I needed guidance.

Though I do not doubt that my strength and my drive for independence were two very important factors that got me where I am today, I know without a shadow of a doubt that the many mentors I’ve had throughout my life provided me with a level of support that not only acted as a cushion when I was feeling low, but also propelled me forward and taught me to reach for all the possibilities that were awaiting me. Even though I am naturally one of those people who makes sure to tell the people I care about how much they mean to me on a regular basis, I also believe that you can never say “I appreciate you” too many times. It’s a simple three word phrase, but it has the ability to hold an amount of emotion I can’t even begin to describe.

“In the end, though, maybe we must all give up trying to pay back the people in this world who sustain our lives. In the end, maybe it’s wiser to surrender before the miraculous scope of human generosity and to just keep saying thank you, forever and sincerely, for as long as we have voices.” – Elizabeth Gilbert

There is something really special about taking note of the people in your life who have shaped you. Though I definitely know that my parents fall into that category, I’m referring to those people who shaped me without being asked. Those people who, though it was never asked of them, established connections with me because they hoped to influence my life in a positive way. Even though the concept itself seems like a no-brainer, I know that I wouldn’t be who I am today with the mentors from my past and present. Each one of them has provided me with support, encouragement, love, advice, and best of all…their time. I don’t know what it is about establishing connections with people who want nothing more than to learn from you, while also hoping to positively influence you…but it has brought me more happiness than I can even begin to describe.

In simple terms, I thrive off of connections with other people. In some situations, those connections don’t lead to a positive result, but in the best circumstances, I have gained not only a friend, but someone who I am able to appreciate and learn from. I believe that my need and love of having general connections with others is very much related to my desire to work in the helping profession as a counselor. Since I have had mentors within my own life who have impacted me in ways I never could have imagined, I want the chance to impact others in the same way. I want to know that in some small way, I helped someone. Whether it’s helping them to realize that they are worthy of the love that others are showing them or helping them to see that the traumatic event from their childhood doesn’t define the person they are today, I want to be there through it all. I want the chance to help them discover who they truly are, even if that means uncovering things about themselves they’ve kept hidden for so long for fear of being ridiculed.

Therefore, to all my mentors, past and present (Mike, Tucky, Chuck, Dr. Cox, Mr. Richard, Miss Mary, Miss Marie, Mrs. Trish, Dr. Cahill and Mrs. Walker)…I appreciate each and every one of you. You each have helped me to realize something different, but equally important, about myself, which has helped me to continue to discover who I truly am. You’ve each supported me when I’ve been down, and have continued to support me through my successes. You’ve shown me what it means to be selfless because I know that none of you felt obligated to be a positive influence my life. You chose to fill that role on your own accord, which means more to me than you will ever know. In all actuality, there are not enough words in the English language to express how much I appreciate each and every one of you. If it means saying “I appreciate you” every day for as long as I live, then that’s exactly what I will do.

TED Talk by Sarah Kay: If I should have a daughter.

2 Dec

Sarah Kay: If I Should Have A Daughter

If I should have a daughter, instead of “Mom,” she’s gonna call me “Point B,” because that way she knows that no matter what happens, at least she can always find her way to me. And I’m going to paint solar systems on the backs of her hands so she has to learn the entire universe before she can say, “Oh, I know that like the back of my hand.”

And she’s going to learn that this life will hit you hard in the face, wait for you to get back up just so it can kick you in the stomach. But getting the wind knocked out of you is the only way to remind your lungs how much they like the taste of air. There is hurt here that cannot be fixed by Band-Aids or poetry. So the first time she realizes that Wonder Woman isn’t coming, I’ll make sure she knows she doesn’t have to wear the cape all by herself because no matter how wide you stretch your fingers, your hands will always be too small to catch all the pain you want to heal. Believe me, I’ve tried. “And, baby,” I’ll tell her, don’t keep your nose up in the air like that. I know that trick; I’ve done it a million times.

You’re just smelling for smoke so you can follow the trail back to a burning house, so you can find the boy who lost everything in the fire to see if you can save him. Or else find the boy who lit the fire in the first place, to see if you can change him.” But I know she will anyway, so instead I’ll always keep an extra supply of chocolate and rain boots nearby, because there is no heartbreak that chocolate can’t fix. Okay, there’s a few heartbreaks that chocolate can’t fix. But that’s what the rain boots are for, because rain will wash away everything, if you let it. I want her to look at the world through the underside of a glass-bottom boat, to look through a microscope at the galaxies that exist on the pinpoint of a human mind, because that’s the way my mom taught me.

That there’ll be days like this. “There’ll be days like this, my momma said.”

When you open your hands to catch and wind up with only blisters and bruises; when you step out of the phone booth and try to fly and the very people you want to save are the ones standing on your cape; when your boots will fill with rain, and you’ll be up to your knees in disappointment. And those are the very days you have all the more reason to say thank you. Because there’s nothing more beautiful than the way the ocean refuses to stop kissing the shoreline, no matter how many times it’s sent away. You will put the wind in winsome, lose some. You will put the star in starting over, and over. And no matter how many land mines erupt in a minute, be sure your mind lands on the beauty of this funny place called life. And yes, on a scale from one to over-trusting, I am pretty damn naive. But I want her to know that this world is made out of sugar. It can crumble so easily, but don’t be afraid to stick your tongue out and taste it. “Baby,” I’ll tell her, “remember, your momma is a worrier, and your poppa is a warrior, and you are the girl with small hands and big eyes who never stops asking for more.” Remember that good things come in threes and so do bad things. And always apologize when you’ve done something wrong, but don’t you ever apologize for the way your eyes refuse to stop shining. Your voice is small, but don’t ever stop singing. And when they finally hand you heartache, when they slip war and hatred under your door and offer you handouts on street-corners of cynicism and defeat, you tell them that they really ought to meet your mother.

Creativity according to Elizabeth Gilbert.

24 Nov

Elizabeth Gilbert TED Talk: Your Elusive Creative Genius

“You were given life; it is your duty (and also your entitlement as a human being) to find something beautiful within life, no matter how slight.”

“We don’t realize that, somewhere within us all, there does exist a supreme self who is eternally at peace.”

“In a world of disorder and disaster and fraud, sometimes only beauty can be trusted. Only artistic excellence is incorruptible. Pleasure cannot be bargained down. And sometimes the meal is the only currency that is real.”

“Your treasure – your perfection – is within you already. But to claim it, you must leave the busy commotion of the mind and abandon the desires of the ego and enter into the silence of the heart.”

Lessons from Lucy Grealy.

19 Nov

Another Instagram photo. 🙂

“I viewed other people both critically and sympathetically. Why couldn’t they just stop complaining so much, just let go and see how good they actually had it? Everyone seemed to be waiting for something to happen that would allow them to move forward, waiting for some shadowy future moment to begin their lives in earnest. Everybody, from my mother to the characters I read about in books (who were as actual and important as real people to me), was always looking at someone else’s life and envying it, wishing to occupy it. I wanted them to stop, to see how much they had already, how they had their health and their strength. I imagined how my life would be if I had half their fortune. Then I would catch myself, guilty of the exact thing I was accusing others of. As clear-handed as I was, sometimes I felt that the only reason for this clarity was to see how hypocritically I lived my own life.”-from Autobiography of a Face by Lucy Grealy