World CP Day: Leaving My Mark.

5 Sep

I hate that I didn’t realize until late yesterday evening that yesterday was the very first “World Cerebral Palsy Day” in the United States. According to, “World Cerebral Palsy Day is an innovative way for 17 million people with CP to tell the world how they want to make their life better. World Cerebral Palsy Day is also the way people with CP can make it a reality.” Upon reading the website’s explanation of World CP Day, I thought of one thing: I thought of the way I’m already working on telling the world how I’m making my life better. I’m writing my memoir of what it’s been like to live with Cerebral Palsy, and even though I’m doing it for me, I’m also doing it for the other 16,999,999 people who may be struggling to find someone who they can relate to, or simply someone who can say, “I know exactly how you feel.”

Through writing my memoir, I want to be that person for those other 16,999,999 people who may not have someone to listen. The funny thing is…I never thought I would be an advocate for Cerebral Palsy. My disability was something that I tried so hard to get away from. However, I should know that you can’t run from something that will be forever a part of you. For much of my childhood, having CP wasn’t something I was proud of. I wanted to get as far away from it as possible. I wanted to be treated as if I was just like any other kid that lived on my block. However, ever since starting to write my memoir, I’ve become someone I never thought I’d be: I’ve become the girl with Cerebral Palsy who wants to share her story of overcoming obstacles with the world. Before it dawned on me that I had the power to impact others with my words, the idea of writing my memoir hadn’t surfaced. But truthfully, my idea to start writing about my life came in a single moment one night in January. All I was doing was thinking about what I faced and how for my entire life I had been looking for someone who could understand me. However, on that cold night in January, even though I hadn’t found someone who could understand me, I realized how bad I wanted to be that person for other kids with Cerebral Palsy.

Writing my memoir of what I’ve been through has been an incredibly slow process. Since January, I’ve only written 14 pages. Even though that small number makes me cringe, I also know that writing my memoir is the only thing that will finally allow me to accept myself as well as help other kids who are currently faced with what I have been through, and continue to go through on a daily basis. So yes, it’s probably the hardest thing I’ve ever done, but when I think of the look of love and comfort I might receive from just one kid with CP, that’s worth so much more. It may even be worth everything.


7 Responses to “World CP Day: Leaving My Mark.”

  1. Anita S September 5, 2012 at 7:38 pm #

    You are awesome! You remind me of the saying, “Be the change you want to see in the world.” You’re making it happen!

  2. Lisa W. Rosenberg September 5, 2012 at 11:03 pm #

    You honored the day without even knowing it. I believe what you are doing–this blog and the memoir–is so important, not just to the CP community, but for the rest of us as well. I feel lucky to be following your blog.

  3. Carrie September 5, 2012 at 11:06 pm #

    I did not know about this either. Thanks for sharing the news and your story. Peace.

  4. AT Dad September 6, 2012 at 1:12 am #

    As a parent of a child who happens to have Cerebral Palsy I think you are underestimating the impact of your blog and memoir. Not only am I looking for that person my child can look to for understanding, I am looking for that person(s) who can help me understand even the smallest amount of what my child is experiencing. Thank you for sharing your life with us.

  5. yogikarenk September 7, 2012 at 10:26 am #

    It looks like you have a great forward here for your book. I am cheering you on my dear friend!

    • ameliaclaire92 September 7, 2012 at 11:47 am #

      Really? You think so? I haven’t thought of having it be my forward.

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